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Biotech / Medical : Elan Corporation, plc (ELN)

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To: scaram(o)uche who wrote (6234)	1/8/2005 9:46:43 AM
From: rkrw	Read Replies (1) of 10345

MS message board post........ Tysabri ------------------------------------------------------------- I'm still in limbo land...dx is transverse myelitis and neuro is following MRIs every 3 months to see whether there's any change. Only lesion is one large one on cervical spine--no brain, thoracic or lumbar probs. But have lots of MS symptoms and HORRIBLE lumbar/sciatic pain. So I've been sitting in the doc's infusion clinic doing IVS for the past 5 days. I'm not taking any meds for MS. What I'm finally getting to is that the charge nurse at the infusion center has been calling patients all week, at least for the entire hour that I've been in there each day, and letting them know that their insurance carriers have approved them for tysabri and setting them up to begin their treatments. They are being advised to remain on whatever med they are currently taking. The first several tysabri infusions will be done slowly--over a three-hour period, and the patients will be asked to remain in the clinic for observation for two hours following the infusion. If there is no sign of anaphylactic shock (and something else, which escapes me at the moment), then the infusions will be given at the normal rate, once the the patient's tolerance for the new drug has been established. Everyone seems extremely excited, including a couple of patients who were actually receiving their three-hour infusions. I know this doc is very active with the national ms organizations, and she is using the drug on those patients who seem to be having difficulties despite the other meds. But the exciting thing is that people ARE being helped by the drug, and at least part of the cost is being shared by their insurance carriers. That was the bright spot in my day. I wanted to share.

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