Here's a recent article on treatment costs: (article and graphic on costs on various drugs can be found at): news-observer.com New AIDS treatments put strain on programs for poor
By CATHERINE CLABBY, Staff Writer
North Carolina health officials say they can no longer afford to pay the drug bills of all low-income AIDS patients eligible for their help, meaning some people may not get access to life-extending medicines. "I don't know what we're going to do, I just don't," said Trish Bartlett, a social worker who works with AIDS patients at Duke University. "This has been a lifeline for us." The N.C. AIDS Drug Assistance Program has stopped accepting new clients because the high cost of new drug therapies is quickly eating up its $3.6 million budget, said Arthur Okrent, who runs the state's AIDS care branch. Drug assistance programs all over the country are facing similar problems. Many have taken emergency measures to limit costs, including setting up waiting lists and restricting the drugs they will pay for. The crisis is a side effect of the success of a triple-drug AIDS therapy that became the preferred treatment last winter. The drugs are credited with extending the lives of thousands of patients, and their success is encouraging people infected with HIV, the virus that causes AIDS, to seek early treatment. The downside is that the drugs cost as much as $1,500 a month, and programs such as North Carolina's haven't set aside enough state or federal money to cover the cost for everyone who needs them. "Fewer people are dying, more people are signing up and the cost of treatment is increasing," Okrent said. Members of the N.C. AIDS Advisory Council on Monday said they were frustrated that the state's action came without warning. As recently as August, members had asked Okrent whether the program was stable and he said yes. "Just a couple of months ago we were told that everything was fine," said David Jones, a council member from Chapel Hill. Okrent said demand for treatment has surged since August. Medication costs were $428,000 in August, but rose to $648,000 in September, he said. Last year, about 1,140 people used the medication program, which is designed to help uninsured and low-income people who are not sick or poor enough to qualify for Medicaid. In September of 1996, the average participant's monthly bill was $250. Last month it was more than $1,000. Kimberly Scott, executive director of the Eastern N.C. AIDS Consortium, said she worries most about the impact this limit will have on people who live in rural or remote parts of the state, where the virus is spreading. "People are beginning to see the results of these drugs among their peers. They are coming in and saying 'Yes, I want to be tested and I want treatment,' " she said. "This is going to impact the level of trust we have established." Okrent said his staff decided to limit new enrollment rather than risk running out of money and being unable to cover the bills of patients already enrolled. People who take the new drugs and then stop can develop drug-resistant strains of HIV which they could then transmit to others, he said. While his staff expects they may encounter a $500,000 shortfall by the end of the fiscal year in March, Okrent said they will find a way to pay the bills of everyone now enrolled. Denying this medication will take a toll on people who already are struggling, said Don Barefoot, an uninsured Durham waiter who depends on the state program to pay for his AIDS drugs. "It's bad enough when you find out about the diagnosis. But to hear about promising new drugs and you can't apply for it?" he said. "It's just one more sword through the heart." Catherine Clabby can be reached at 829-4871 or cclabby@nando.com
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