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Biotech / Medical : Elan Corporation, plc (ELN)
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To: IRWIN JAMES FRANKEL who wrote (9680)6/30/2008 11:56:52 AM
From: IRWIN JAMES FRANKEL  Read Replies (4) of 10345
 
Another update (short summary) on my wife's experience on Tysabri:

The first two infusions had no noticeable effect.

The third infusion resulted in a couple of days of symptomatic relief.

The fourth infusion resulted in about 16 days of relief after which the symptoms returned/increased.

The fifth infusion suppressed the symptoms within 8-10 hours of the infusion. Today is day 28 (infusion 6 tomorrow) and only a few of the symptoms have returned and those that have are at a significantly reduced level. This is really what we had hoped for - a reduction/elimination of the adverse symptoms that would last for the whole term between infusions.

It has been 3 or 4 years since my wife an I played tennis. Before MS took it's toll, she was always the more athletic and beat me at tennis and ping pong. MS impaired her balance and I could not stand to play with her and watch/wait for her to fall down. So we stopped playing. Recently we played again - two sets. I saw no signs of the balance problem that had been so pronounced. She did have difficulty moving well enough to play well. So I easily won.

I also see the balance change when we walk together - she does not bump into me as she did.

I suspect we have seen the most significant results of T and I do not want to become a bore with these posts. So unless something significant happens I will stop the reports here. I do suspect that we will see slow improvements over time as the damaging autoimmune attacks are suppressed.

IMO, T is the "gold standard" for treating RRMS.

ij
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