From a poster on PPML (I have withheld his ID since I did not ask his permission to post here first)
This fellow has been further down the road than I have. Think of this gentleman the next time someone mentions that "prostate cancer is one of the most curable". Indeed, there are tons of stories like this one out there....the only thing exceptionable about mine is my relative young age. Maybe that is part of the problem, who cares about a bunch of "old farts" twenty years out to pasture. (median age for PCa is something like 73) Well, guess what you young studs out there, this shit can happen to *YOU* too!
Know your PSA, family history.....critical info you may need a few years down the road!
******************************
Return-Path: (name withheld)
Date: Sun, 16 Feb 1997 20:44:50 -0500
From:
To: Hubert Few <hfew@ATL.MINDSPRING.COM>
42 years old and PCa. You are another of the youngsters out here. It is seldom, I am glad to say, that I see a post from another person who was detected with PCa in the early forties. I always try to set up some communication with them. I feel that being the younger group out here we have some additional concerns that some of the older members do not share with us just due to their age. This is not to say that they are not concerned about us just a different point of View. I was blessed with being able to go to the PAACT conference last fall and almost all there looked like my Dad.
Catch me up on where you are at with PCa treatment. Just from the post
today I have a feeling that you have not had the "pleasure" of playing this game for very long. I will add my digest so you can see my journey. I am 45 now married 1 daughter in collage and another a junior in High school and a son who is 13.
I can not add anything about you surgery except you need to be a little more forceful so you will know what to expect. Some doctors do like to give out a lot of information. Of course does are no longer working for me. Mine are required to keep me informed and to communicate. I hired them and I can fire them. I look at them as consultants. I believe that communications are a part of being a good doctor.
Keep in touch and let me know what you find out.
God Bless
Date PSA Treatment
6/11/90 55 BPSA age 38 Large hard prostate Probably scar tissue due to multiple previous surgeries
2/12/91 Dx Pca Stage C PAP 2.4 Gleason 3+?=6 clinical stage of T3a
Partin predictions (Avaible to me 6/96), 5% for organ-confined disease, 95% for capsular penetration, 31% for both seminal vesicle and node involvement bone scan neg CT scan extracapsuler extension of prostate
4/1/91 1 month CHB lupron & eulexin prior to Nerve spareing RRP, Gleason 3+4 = 7, Path Report : carcinoma replaces most of the prostate and is 4.0 x 3.0 x3.0 cm (36cc) in greatest deminsion. Capsular penetration & Seminal Vesicle involved on right side , Carcinoma is present in apical sections & in surgical margins, lymph nodes neg, ,
4/22/91 0.3 (all of these are references to PSA....<hubert
6/17/91 2.4 start monotherpy Eulexin 2 125 mg cap every 8 hours
PSADT>2weeks PSAV 12.6ng/ml/yr
7/29/91 0.4
10/21/91 0.4
1/29/92 0.5
4/7/92 0.4
8/3/92 0.5 Advised to have RT
8/4/92 0.5 after message of former prostate bed Neg bone &CT scan
9/28/92 Stopped eulexin in prep of RT wants PCa to be not
suppressed while dong RT
10/12/92 2.2 Start RT 30 x-ray treatments
1/26/93 11 First test 8 weeks after rt complete PSADT >4weeks PSAV
20.2 ng/ml/yr
2/5/93 11.2 3 RT treatment to breast to prevent additional breast
enlargement & sensativity due to monotherpy of Eulexin restart Eulexin
3/16/93 1.7
7/27/93 0.9
10/26/93 0.9
1/20/94 1.1 at OSU lab
4/26/94 2.0 At Roche lab
6/14/94 1.5 At OSU lab
8/31/94 2.8 All lab test after this date done at Roche lab
9/26/94 2.5 Start monthly lupron injection +eulexin 6-125 mg cap /day
Testoterone level 569
11/23/94 0.5
2/6/95 <0.1
5/12/95 <0.1
8/2/95 <0.1
10/20/95 <0.1 9month + of non-detectable PSA started MCP
2/5/96 0.4 retested on 2/12 stopped eulexin due to this increase
continuing on monthly Lupron
3/8/96 0.2 -
5/3/96 0.7 -
6/20/96- 0.7- Uro wants to wait till PSA at 1+ before doing
Prostascint &further treatment testing every 6 weeks
7/12/96 1.1 PAP 1.2 Took test due to pain in hip area
8/5/96- -- Bone scan Neg Prostascint test shows Pca only in prostate
bed (mouse antibodies used )
8/13/96 1.39 Start casodex
9/17/96 1.19 -
10/15/96 1.48 -
11/16/96 3.05 Stop casodex
12/9/96 4.33(4.8) lupron`+cytadren (AG) + hydracortisone adrenal
gland shutdown Bone scan Neg.
1/3/97 (2.1) Neck lymph node Biopsy + for PCA Abdominal Cat Scan
Negative
2//6/97 1.36
Complications: incontinence, after RP at 90% of normal deteriorated to 80% imediatly after RT deteriorated to 50% over the next 2 years and even more in first few month of CHB 7/95 collagen injection back to 80% then again loosing, second collagen injection 9/95 almost no control by 1/96, 5/96 AUS implant (Artificial Urinary Spinter) AMS Model 800 Urinary Prothesis activated 6/27/96 ( WORKING GREAT)
Hot flashes on CHB Major Problem2-3 whole body sweats per hour, Catapres TTS-1 patches almost complete control(normally used for blood pressure control) must use patches not tablets
Not needed now due to soy in diet??
I learned I was going to die ,so I decided to LIVE till I die.
(from Peace Love and Healing by Bernie Seigel) |
