To: American Spirit who wrote (51223 ) 10/24/2000 2:25:26 AM From: KLP Respond to of 769667 Wrong again, AS....and now, with the info below, YOU will know the answer... The first part is a definition of the problem, and the second is part of a paper that a patient with a problem, penned.....rwjf.org The chronic care delivery system is in a state of flux. Traditional definitions and boundaries of home and institutional care, and the personnel who deliver chronic care services in these various settings, are blurring. New mechanisms for the delivery of care are emerging. Among the trends that have developed in recent years: Deinstitutionalization National policy over the past three decades has sought to minimize the number of people who must rely on institutions for personal assistance. This policy, known as deinstitutionalization, has created several important ripple effects. For one, many deinstitutionalized people with mental illness have encountered a community-based care system lacking in funding and coordination. Another significant effect is a change in the population living in nursing homes. Nursing home residents used to comprise a broad range of persons in various stages of illness and disability. Today, nursing homes care primarily for the frailest people, particularly those with significant mental impairments, strokes, or Alzheimer's disease. People in nursing homes tend to have few financial resources and some have no one looking out for their interests. The vulnerability of the deinstitutionalized population has raised concerns about ensuring that their well-being is adequately protected. Home care and other community-based alternatives People with functional limitations who once might have gone to a nursing home now have alternatives, such as home care, assisted living, and adult day care. Perhaps the single most salient trend in chronic care is the rapid emergence of home health care as a multifaceted source of services, ranging from intravenous infusion of medications to physical therapy. Between 1979 and 1990, the number of home health agencies providing Medicare services doubled. Agencies that cater to private payers increased in number as well, primarily among for-profit and hospital-based home health agencies. Home care expenditures almost doubled between 1990 and 1993. The average home care visit in 1993 cost about $66. Yet the quality of home care services varies widely because the industry does not have consistent standards, accrediting or licensing requirements, and few formal credentials are required for home health aides. In sum, this state of flux represents both risks and opportunities: there is an opportunity for services to become more person-centered and responsive, and for inefficient bureaucracies to be replaced. At the same time, questions remain of how to effectively target and allocate services within limited budgets, and of how best to measure and monitor the quality of care delivered by a widening range of personnel in an expanding array of settings. ******************************************* This is a "snip" of the article referenced below....mentalhealth.com Between 1972 and 1979, my quality of life in the community was poor. My lifestyle resembled that of the many psychiatric patients I see living in the community today. I slept until noon or later every day, then spent the rest of the day and night wandering the streets - drifting from coffee shop to coffee shop. In terms of meaningful activities and personal relationships, I had lived better when I was a patient (six months in 1968) at the Lake Shore Psychiatric Hospital in Toronto. Deinstitutionalization is effective in lowering the quality of life for the seriously ill. While community programs benefit psychiatric patients who are highly motivated, an effective institution is more able to meet the needs of those who are seriously ill. Continued deinstitutionalization will do what it has been doing since the early 1970s, lowering the level of care and support that sufferers of severe mental and emotional illness need and deserve.,/b> I speak as someone who has no vested job interest in an institution. My concern is for the welfare and for the needs of others. I question the real costs of deinstitutionalization