Silicon Investor (SI) -- The First Internet Community

STOCKTALK

We've detected that you're using an ad content blocking browser plug-in or feature. Ads provide a critical source of revenue to the continued operation of Silicon Investor. We ask that you disable ad blocking while on Silicon Investor in the best interests of our community. If you are not using an ad blocker but are still receiving this message, make sure your browser's tracking protection is set to the 'standard' level.

Biotech / Medical : CEPH -- Ignore unavailable to you. Want to Upgrade?

To: Rudy Saucillo who wrote (768)	5/14/1998 7:36:00 PM
From: Greta Mc	Read Replies (3) \| Respond to of 998

Rudy, I appreciate you providing the additional info on Myotrophin, unfortunately, it has given me reasons to vent. My mother died form ALS in Nov, 1996 and I did not realize that in June, 1996 that the FDA knew about this drug but wanted more tests (and I admit that I do not do the research on this as i should--I guess it's just too painful, personal). My mother would have done and did do everything to fight this disease. Yes, she had a bad case. But the FDA, it seems to me, does not fully appreciate that the victims of this disease lose all use of their muscles (in varying degrees- walking, talking, swallowing, use of arms and hands, bodily functions, breathing) while their minds are in tact. All I can say (vent) is shame on them. But like I said, it's personal for me. Not looking for a fight, but just had to express that.

To: Rudy Saucillo who wrote (768)	5/14/1998 9:31:00 PM
From: arnie h	Read Replies (1) \| Respond to of 998

Not taking sides with or against CEPH. Just pointing out the FDA gave their response at 7pm on the last day they could. Why not several months ago so people with ALS didn't have false hope for those months? Insofar as I can tell, the ALS society appears anxious to have the drug made available. The whole episode seems like a personal matter where the FDA is going to show the companies who's boss instead of worrying about the patient base. Hardly what one would expect of mature people.