To: Poet who wrote (5685 ) 3/7/2003 10:30:37 AM From: Jill Read Replies (1) | Respond to of 7689 Amy Tan has lyme disease:abclocal.go.com This June it will be 3 years I have suffered from this devastating infection. I have tried many things to get rid of it. This summer I did 8 weeks of hyperbaric oxygen ($8,000 for the treatments alone) in Great Barrington, MA, which did get rid of the debilitating headaches. When looking for a house to rent or share, I said to each owner (a stranger) what I had said to you before I came out to look at your cottage, at a time when you were supposedly my friend, and I did not have lyme but knew that it could be quite serious and require high amounts of antibiotics which I can't tolerate (a friend had been on IV antibiotics for it after acquiring it in Montauk) and even then could become chronic: "I can't afford to get lyme disease. Are there ticks around your house?" Each person answered honestly. Each stranger, I should say. One said, 'My dog had lyme, but I've never had it.' Another said, "My daughter had it, and I found a deer tick on my son." Another said, "We never have ticks here." She was right; her house was in town and it was perfectly safe and that was the one I rented. Each person was honest. And they didn't even know me. It was simply common decency to answer the question. Even though you posted on SI about a year after I got lyme in your garden--in answer to a poster whose nephew had lyme--that you lived 5 miles from the epicenter, that you knew it was a 'devastating illness', that you put tick meds on your dogs and they still brought ticks into the house and still got lyme...your answer to me before I visited when I brought up lyme and the risk to me, was that you thought it would be fine. That was it. Two weeks after visiting you, when I got a bullseye rash, you told me I could've gotten it anywhere, even Central Park, where, you claimed, there were deer. My life in terms of health has been very difficult every day since then. I don't care about the $ I've had to spend--probably about $25-30,000 on treatments and health issues related to lyme. I do care that my quality of life is so drastically changed. Just thought you might want to know that it seems chronic and I am still searching for ways to get over it. This all could have and should have been avoided if you answered honestly. Lyme is endemic in the northeast but it is risk-free in some neighborhoods and high-risk in others. It really depends if deer come visit your home and gardens. A person visiting friends who brings it up can't know ahead of time. If the person says it's safe, they believe them. It was brought home again to me this summer, as I said, when perfect strangers answered the question honestly--even if it meant losing income (i.e. me, a renter). I am posting this now partly because of Amy Tan, but also because an SI friend told me yesterday you were still on here.