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Biotech / Medical : Share your aches,pains,experiences,joys and cures. -- Ignore unavailable to you. Want to Upgrade?


To: epicure who wrote (527)4/15/2007 7:41:04 PM
From: Rambi  Read Replies (1) | Respond to of 1564
 
Hey, we are saying the same thing! Surprise.



To: epicure who wrote (527)4/16/2007 10:58:17 AM
From: Rarebird  Read Replies (1) | Respond to of 1564
 
>>Frequently the side effects just aren't worth the risk of taking the drug, especially for chronic conditions.<<

Yes, sometimes the treatment or side effects can be almost as bad as the disease; but if one refuses the treatment, then one may be signing one's death sentence. Let me give you a concrete example here:

My wife has CPD (Chronic Pulmonary Disease). She has a Pulmonary Infection with Mycobacterium avium-intracellulare (referred to as MAI for short). MAI is often referred to as the "sister" or "cousin" of TB. But it is actually very different in some decisive respects. For one thing, MAI is not contagious, whereas TB is contagious in its initial stages. Secondly, the success rate for TB is extremely high in the USA (over 95%) if one stays on the prescribed medications for a year. However, the failure rate for MAI, in terms of relapsing, is at least 50%. Moreover, there is no medical consensus as to what the exact treatment should be. In the USA, Zithromax or Clairomycin is given, along with Ethanbutol (Myambutol), as a filler so the patient does not develop resistance to Zithromax. In England, they administer somewhat different drugs that have not been approved here. Each doctor in the USA tends to prescribe different doses too. 50% of the people who get MAI are HIV+.

My wife is not HIV+. She was placed on Zithromax (250MG) and Ehanbutol (400MG) daily. (Failure to take the medication eats the lungs away and spreads throughout the whole body.) She regained her strength in a couple of months and lived a "normal" life while she was on this medication for 18 months. Her Pulmonary specialist, who runs a factory, and her disease control doctor, were both cheerio, saying things looked good for absolute recovery. I had my doubts since I had read all the available literature on MAI online.

After being off the medication for 10 months, my wife relapsed; but we caught it early. We switched to a Pulmonary specialist who has treated about 1,000 cases of MAI. From looking at her catscan, he diagnosed her illness as follows:

"A syndrome of chronic cough and sputin production consistent with constant bronchitis or bronchiectasis or both."

My wife does not have the cilia (or hairs) which protect the lungs from germs or bacteria like MAI, which is found everwhere, in the soil, in chicken, etc. I wonder how this happened?

Patients, like my wife, "come to the physician coughing and spitting with black (or blood-streaked) sputum and with nodular and ill-defined opacities on chest radiographs. Remarkably, the overwhelming majority of of these patients are women between the ages of 50 and 85."

Now my wife was on Enbrel (for her Rheumatoid Arthritis), which repressed her immune system and that is another reason why she got MAI. I urge all on here to listen to these commercials which are on TV for Enbrel, Humera, etc, they specifically state the risk of getting a pulmonary infection like MAI, TB. Most don't listen; they just want relief from pain.

Side effects from Zithromax are cramps and diarrhea. We got this under control.

My wife is also taking an alternative medicine ASAP solution:

asapsolution.com

americanbiotechlabs.com./

It retails at the GNU stores as "silver biotic." I've had someone on SI who turned me on to this via PM and says it has cured (or placed in remission) his lime disease.

Is ASAP working? I'm not sure. We are using a multi-faceted approach. My wife's cough did go away in 2 weeks and she has regained most of her strength. She is taking Zithromax, Ethanbutol and ASAP Solution (4 teaspoons a day). She no longer has any diarrhea since taking ASAP, whereas she had diarrhea when she was just on the Doctor prescribed Zithromax and Ethanbutol.

The real test will come when my wife has another catscan. If the cavity where the MAI originated has closed up, then we will know it is due to the ASAP solution because the Zithromax was only able to contain the spread of the bacteria and colonize it in the area where it originated.




To: epicure who wrote (527)4/16/2007 11:02:32 AM
From: Travis_Bickle  Read Replies (1) | Respond to of 1564
 
"and frequently the side effects just aren't worth the risk of taking the drug"

I got prescibed a medication that I took for a couple of weeks and it pretty much made me a eunuch, it was horrible. Went back to the doc and told him it just wasn't going to work.